On Down Syndrome

Down syndrome. Where to begin…A mother that I have become fond of through her blog said it best, “I love it and I hate it. But, I think I love it a little more than I hate it.”
 
When I was pregnant with Daniel it was devastating news. I am so embarrassed to say this. I look at him now and it breaks my heart that I was ever ashamed or scared of what and who he would be. He makes me proud everyday and he has made me a MUCH better person just in the last few months. I am more patient, compassionate, and nurturing. I am less selfish and judgemental. Daniel has truly changed the lives of everyone lucky enough to be in his presence.
 
I try to reassure mothers who I talk to online who have had a prenatal diagnosis. It IS a scary thing to know only two things about your baby (the sex and that they will have Downs) before they are born and having one of them be something big enough to change yours and their live forever. You mourn for that baby you thought you would have. It is such a scary ordeal because having Down syndrome defines them. After Daniel was born his Down syndrome slowly started to fade from my mind. It became just another part of him, like his blue eyes or his huge belly. I can honestly say I go DAYS without even thinking about it.
 
Another mom who has a daughter with DS had said “I am not a Saint, I’m a mom” I have to agree with her on this. Some people feel like having a baby or child with special needs takes someone special or someone with superhuman powers. It doesn’t. However, I do feel like I was chosen to do it. It is just like having a “normal” baby…except for instead of having dance or piano every week we have some kind of therapy. And, to be honest, therapy really isn’t bad. It’s actually quite fun. We love our occupational therapist Gwen and our physical therapist Rick. They are a lot of fun and it is really rewarding showing off Daniels progress. 
 
To sum up our life and Down syndrome –> Some days are fun…some are definitely not. Most days are happy, though we have some hard times now and then too. Every once in awhile something crazy or exciting happens, but most of the time things are painfully average and boring…basically our lives even with an extra chromosome are NORMAL.   
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3 thoughts on “On Down Syndrome

  1. Hi Whitney;

    It’s been a while since we spoke but I think of my days at SMSU and remember you often. Your family is beautiful and Daniel is a blessing. Thanks for sharing these stories on your blog, you’re a great mom.

    Warm wishes 🙂
    Chudy, N.

  2. I thank you for your words of honesty. I am 25 weeks pregnant with a precious little boy who has down syndrome. I have good and bad moments. Sometimes I hate how I feel and am so ready for him to be here. I feel like once he is here I will get to see him for who he is and not his diagnosis.

    • Kelli. Thank you for your comment 🙂 I am so excited for you and your little boy. I am happy you have found us at our blog. Reading blogs when I was pregnant with Daniel gave me such comfort. Seeing that there is such “normalcy” even with having a baby with DS was such a relief. I’m sure you know exactly what I’m talking about. Good luck in your pregnancy. Keep in touch. I look forward to seeing pictures!

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